Alive And Well—–Living With Huntington’s Disease

Huntington’s Disease (HD) is a devastating, degenerative, hereditary brain disorder. HD is similar to the better-known Parkinson’s Disease, in that it is a disorder that affects movement.

The major difference is that Huntington’s Disease is genetic. If either of a person’s parents has HD, there is a 50/50 chance that a son or daughter will inherit the condition. Also, HD begins to affect people generally between 30 and 50, whereas Parkinson’s symptoms become apparent between ages 50 and 70.

Hope Hospice has scheduled a showing of a documentary film that showcases 7 individuals who are living with Huntington’s Disease. The film, titled Alive and Well, is an upbeat story of people who choose to make the most of their lives, despite their circumstances.

The film will be shown on Thursday, February 27, 2014, 7:30 p.m. at Wehrenberg’s Des Peres Ciné at I-270 and Manchester. Cost is 10.75. A minimum of 100 tickets must be sold by February 12 to assure that the screening happens.

To purchase tickets to Alive and Well, click HERE and order online.

A person whose parent has Huntington’s can take a pre-symptomatic test to determine if he or she is likely to get the disease. The testing has only been available for the last two decades. The vast majority of individuals who are at risk have not been tested. Those who choose to be tested must attend counseling sessions beforehand, to help them deal with the outcome.

At this time, there is no cure for Huntington’s Disease but drugs are available to control certain symptoms.

Hope Hospice has had patients with HD, but the number is comparatively small, compared to those hospice patients with other conditions.

We are looking forward to the opportunity to learn more about Huntington’s and see these courageous people featured in Alive and Well. We hope you can join us on February 27 at Des Peres Ciné.

If you know someone in your community who is dealing with Huntington’s Disease, please make sure they are aware of this screening. Thank you.

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